First I need to ask for prayer for Manny and his family. Manny is back in the hospital and not doing well at all. Noah and Manny have mirrored each other at times as far as crap they have to go through. Reading this morning about him terrifies me. It could have easily been us going through this this week. Then its like a survivors guilt too that we had great news yesterday and Manny didnt. Its too hard to explain, please just pray God heals Manny right now.
There story is here: http://destinyshousechurch.blogspot.com/2011/02/were-back-in-hospital-that-is.html?showComment=1298558305411#c8938339959267287712
Last week the doctors were deciding that since Noah doesnt stop vomiting ever he needs a GJ tube. I was in the hospital dealing with my own crap while this was being decided. I was not happy. This was a huge step in the wrong direction but God is so good and so faithful. Yesterday we went to the GI and he said that Noah does not need a GJ tube. We had come to observe that the erythamisen Noah was on for delayed gastric emptying was making him vomit. The doctor actually thanked us for observing it and bringing it to his attention. Noah had lost weight but after being put on 25mls an hour for a day or two to help the vomit and then having diarrhea from the barium from the upper GI on Friday and the low calorie formula the kid didnt have a chance to gain. He set us up with a plan increase calories from 28 to 30. Stop erythamisen, which is what I wanted. Still do continuous feeds at 40 an hour for a week see how he does then up to 42 for a week then 45 then we see the doctor and he may consider weaning him from reflux meds. This dr really listens to me. He also explains things to me.
This morning I was worried Noah had woke up and vomited but he hadnt. His extension came open and drained all his food on to him and his bed. It was gross. Thank God for the nurse who got him out of it and into a bath. He is squeaky clean and handsome as ever now. He is a happy boy today. Hoping to make his birthday cake today to use for pictures then maybe tonight take some pics of him. Heres hoping.
Hoping Noah continues to get better, healthier and stronger each day.