Noah is being taken off his feeds. He was put back on 2 hours ago and he is already more congested and vomiting. You cant just not feed a child but Noah does his best when he is not being fed. I feel bad. I am his mommy and I want to fix this but there is not going to be a quick fix. We can't go back and change this all. I cant blame the doctors for not listening me because they dont care and it isnt affecting them. We need to move forward and I need to be stronger. ALl I can do now is insist that he get the best care available.
Please pray that I can be strong and stand my ground and be more voiceful about the care of my son. Being here is so tiresome and lonely. It is so quiet which some may like but having 5 children quiet is not something I am use to nor do I ever wish to be.
I thank you to all those who have skyped with me and made me feel more like I am part of the world. Pray for me to give this all to God also. I was praying and a voice in my head said, "Give it to me." but how? I still have people asking so much of me and I need to make decisions sometimes fast ones. What do I give and how do I give it to God?
Thank you all for praying we truly are feeling that. I feel very blessed to know that strangers who hear our story are touched and hold us up in prayer. Jesus is so proud of ya'll! This is what we are to do and I am so grateful to those of you listening and taking time out of your lives to pray for my baby. Noah is getting better, he has his set backs but he is getting much better.
I will pray God blesses all those who read this.