"Not flesh of my flesh, Nor bone of my bone, But still miraculously my own. Never forget for a single minute,
You didn't grow under my heart - but in it"

Wednesday, December 29, 2010

AH MAZE ING Support!

I am blown away by the amount of people I hear are praying for our baby Noah. Wow! I am praying for each and every one of you to be blessed beyond anything you ever dreamed. If there is anything specific anyone wants me to pray for please leave me a comment and I will pray, I promise.

I feel more peaceful and restful not due to sleep or anything but I know solely due to the prayers going up for us all right now. Noah feels good, a little bored but otherwise better. One thing though is every time he gets a feeding his congestion is back as well as the cough and gagging. So we need some insight in this.

Some of you made suggestions and I have taken them all to the doctor who in my heart I know thinks I am stupid. He dismisses every suggestion and moves on. He shrugs his shoulders arrogantly and without explanation tells me I am wrong. He also doesnt agree with how we live our life. Please pray that God will change his hardened judgmental heart and put him on fire for the Lord.

I wish I could see or talk to or know all of you reading this blog and praying for my son. You have really shown what the body of God looks like. You have prayed for us whether we go to your church or not, whether you have met us or our child, whether you live near or far and I am so grateful to you. Some days are hard. Noah sleeps all day and seems to come alive when his dadddy gets here and then goes back to sleep at midnight and he and I are woken up thru the night with vitals and tests and up the butt temperatures, no fun. We are in isolation from other patients so no going to the play area or anything. We were suppose to have our 3rd negative mrsa test but they lost it so here we stay, door closed and only 4 walls all day. Loneliness is big here.

Anyways I will update later just wanted to say how grateful I am to all of you who pray for us and love us from afar.

Be blessed


  1. Ok, seriously, have they NOT DONE a scintiscan yet? (that's the motility test that shows how fasts/slow the stomach emtpies) have they done a sleep study with ph probe to see what degree he's refluxing in his sleep? One or both of those tests are what to request at this point. They should have been done awhile ago. MANY kids cannot handle gtube feeds without having a nissen done. Some kids can, but only if their feeds are greatly slowed down (like continuous feeds instead of bolus feeds.) I would want the opinion of a different GI doctor. Is that possible for you to get? What hospital are you in?

  2. Oops, forgot to say that Noah will NEVER handle bolus feeds better than he is if his problem is due to slow motility.

  3. Bless your hearts again! I have been praying a lot for this doctor's heart. Please God - burden this dr's heart for Noah and his family. Fill him with kindness and grace and insight. We love you guys! Keep up your good work Mommy!(and dADDY!)

  4. Leah had that problem whenever we were in the hospital. She would get congested every time she ate. The doctors told us it was because of her reflux. Once they gave us the correct medicine and dosage, it cleared up for us. Praying the right doctor comes along that can help Noah.