I have sat down to write several times and always an interruption. Let's see what to say?
Noah hasnt eaten by mouth in 2 months.
He has lost a pound.
The drs are concerned, therapists are concerned.
I took him to his GI and we love her. She is on top of things. The dr says he needs another scope. He will be scoped Tuesday.
New Pulm dr has him on inhaler and breathing treatments. The thinking is less secretions(possibly allergy related) the better his chance of accepting food.
So we need a swallow study as well. Nothing really is gonna happen until after tuesday. This is just a starting point.
I have a lot going on so I need to go. Will update again soon.