I am jumping up and down praising God for my life. I am really loving life. I mean I usually love life but today man today is a day to go down in history. Why? Because we went to the GI and got some great news!
FIRST: Tuesday Noah was weighed by NT and He GAINED!! Finally after months and months of losses he finally had a gain. He was 23lbs 3oz so about a half pound gain. Today only a few days later he had another gain!!! 23lbs 14oz!! 11oz in a couple days!!!
GTUBE: So I talked to the GI and told her Noah has been doing one tube feed mainly because we can not find the right time to fit in that other one!(Remember last month he was on 4 feeds- 32 ozs a day) Because he isnt having a lot of feeds he is eating ALL the time! I told her I wanted to not give him any tube feeds. She said that is the goal! BUT!!!!!! Isnt there always a but! But, one sickness will wipe him right out. So keep your
THE PLAN: We give him one tube feed of only 8oz at night before bed or while he is sleeping. We do this until 2.2.12 at 2pm, our next appointment with her. At that point we will re-discuss. She says she wants him at 26 pounds. 2.2.12- we may be stopping all tube feeds if his reserve is up enough. Keep praying!!!
The doctor was very hopeful. She acted like it was very plausible we would be having the surgery to remove the tube by early 2013!!! She could not stop smiling and just telling me how awesome he looks!
VINDICATION: As a mom of a child with special needs I fight almost daily for my son to have what other kids have. I have had to fight doctors for simply things. I have had to fight to be heard and fight to have my child seen. I have fought. I will continue to fight. So having to always fight it took me completely off guard to have such an awesome doctor and have her say something I hope to remember forever. She said that Noah is only doing this well because of me and his dad. Because of this family. He has littles to look up to and keep up with and she said he has a mom and dad who fight for him and make sure he has all his needs met. She said we work very hard with and for Noah. She said had we not adopted him she has no doubt he would be lying in a crib somewhere hooked up to a feeding tube all day long.(Not a slight to anyone she just meant if he ended up in foster care) Not this active, beautiful, healthy boy he is today. You know, her words felt so good. SO many doctors wrote Noah off and so many wouldnt listen to me. So many things I felt guilty about and all the stuff we went through with him. This doctor said I saved his life. She said I was a good mom. Me? Wow. I am not saying this to brag.
Please keep praying that Noah will continue to eat this well and gain. Speaking of prayer....I think it is awesome how God hears our prayers and answers them. Our children have fervently prayed for Noah every day of his life. They pray every night and at church for Noah to not need a gtube anymore. Our church family prays for Noah. James 5:16 says Therefore confess your sins to each other and pray for each other so that you may be healed. The prayer of a righteous person is powerful and effective.
Thank you all for storming Heaven for us. Thank you for being a part of this miracle.
I found my voice because of Noah. I learned not to sweat the small stuff. I learned how to laugh even when the world around you seems to be falling apart. Noah brought me closer to God. Noah taught me how to slow down and enjoy life. Noah showed me how blessed the life of a special needs mama is. He makes me better. He makes me wanna do better and help others. He gives my life purpose. So I dont think I saved Noah...no way..no...Noah saved me.
"'Nevertheless, I will bring health and healing to it; I will heal my people and will let them enjoy abundant peace and security'" Jeremiah 33:6
Be blessed
Will the insurance now let him have speech therapy since he is eating?
ReplyDeleteI remember this! He is doing well! We will continue to pray for him to progress well. Keep up the good work!
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